Start Date

2019

Description

  • Thirty million U.S. Americans (1 in 10) have at least one rare disease
  • About 15 million of those are children (50%)
  • Only a few curriculums about rare disease aimed at high school, college, and medical students currently exist
  • Prior to development of RareDiseaseEd, there were no courses for children about rare disease
  • Children ought to have access to materials that help them and their peers to understand what they are going through

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Jan 1st, 12:00 AM

Education for the Rare Majority: Development of RareDiseaseEd

  • Thirty million U.S. Americans (1 in 10) have at least one rare disease
  • About 15 million of those are children (50%)
  • Only a few curriculums about rare disease aimed at high school, college, and medical students currently exist
  • Prior to development of RareDiseaseEd, there were no courses for children about rare disease
  • Children ought to have access to materials that help them and their peers to understand what they are going through